The last time I seen my consultant was in March when he arranged a colonoscopy for me, so it was nice to see him face to face with less teary version of myself. Also NOT in pain.
I don’t think not being in pain is ever going to get old. I want to cartwheel everywhere with bells and lights on, letting everyone know that I have NO ACTIVE CROHN’S DISEASE in me. Yip, no sign of any Crohn’s. Apparently when I was on the surgery table they fed a camera through the walls of my bowel or something fancy yet gross like that. They can also judge the future of Crohn’s based on a very solid stool sample I handed in. How clever!
My ever so lovely consultant was happy with my progress. He did state that my insides were a mess (which I knew already). I had 30cm of large intestine removed and 18cm of small. There was also another fistula developing onto the skin so they removed that too while they were already in the area. Makes sense I suppose.
The bad news (yet good news in the long run) is I am back on medication. I wasn’t too happy about that but nothing a wee cry into a pizza couldn’t fix. I am on a daily dose of Azathioprine or Aza for short. They are immunosuppressive so if you have colds, flu, chicken pox or worse please stay out my way if you don’t want skooshed in Detol. The only side effects I have experience so far have been bright yellow pee – I am talking glow in the dark yellow, loss of appetite and feeling sick. I will take them any day over fistulas and strictures!
As Aza is quite a strong drug, I am on fortnightly blood tests (yay for needles – *sarcasm*). This will monitor my liver and kidneys, and also make sure my Crohn’s isn’t creeping back in.
Even though I have NO CROHN’S IN ME (eeek) right now, it does not mean I am cured. It can reappear at any point and anywhere from my mouth to bum hole.
For the time being though I feel fantastic. I can’t stress that enough!! Do you know how good it is to leave the house without the risk of sh*tting yourself? The energy I have to live my life and not be too exhausted to tolerate people. I don’t have to feel guilty about cancelling plans because I am not chained to the loo, or turning up moany because I have no reason to moan! I can poo like a normal person, I can eat veggies (how good are veggies!) and I can be spontaneous.
However, I still can’t handle sambuca…. Sorry Hannah and Anne!